Good morning from chilly (so I hear) Dallas!
Yesterday was a blur. We all escorted Eva to the OR, Eva in my arms, Jon beside me and the tech pushing her crib ahead. We had 10 family members walking behind us. Eva was waving hi to everyone as we went by. I said it was like the world's worst Mardi Gras parade.
When we met with the surgeon, he said that he reviewed the ct scan again and had concerns that it was somehow attached to the pulminary artery and would not be able to be removed at all. They could, of course, not confirm any of that until they went in but it would only take a few minutes to do this. If it was attached, they would just biopsy, give her a port, and close her up. Great! More stress!
As my Dad wrote yesterday, all went well. He said that it was REALLY big for a little Nubbin. He said that it was the size and shape of a plastic football. God only knows how she could function with that thing in her!
Eva is doing well. She is still in the PICU. In meeting with the oncologist, he said that he has never known a child to have Eva's type of tumor to need chemo. Obviously, it depends on what the path says. Within the ganglioneuroblastoma family, there are good ones and bad ones. He said that the way that Eva looks right now, his guess is that it is a "good" one. We'll just wait and see.
Eva is on some pretty heavy drugs right now and they are weening her off so she can get back to her room later today. When we got there, they told me all they were giving her and wanted to make sure that was ok. I said, whatever she needs to make it through the night tonight, I fully support. The dr. was very happy to hear it and said that some moms don't want their kids to have any drugs. I told her I was not one of those moms. Drug her up! The last thing I want is for her to have pain today!
We can't use cellphones or computers while we are in the PICU so if I am a bit delayed getting back to you, please forgive me. As I have said, we are so happy and thankful for everyone's support through this.
Finally, a happy, happy birthday to my baby duck, Jack! We are having a celebration here in the hospital later this afternoon. When I talked to him today, he asked me all kinds of questions about Eva's surgery, "how did they put Eva's chest back on?" "didn't the needles poke her?" "why does she have tubes?"
Here's a shot of him at Disney from a couple of weeks ago! Happy 4th Birthday, big guy!